Life got in the way of me posting on this blog. But telling a colleague today about everything I've done to try and cure myself made me realise that I need to get this all down. I need to help other people. I need for my own sake to document the pain and the problems.
I've been trying to keep a headache diary for the last few weeks to help identify any triggers. I haven't done a headache diary for many years and I remembered why once I started doing this one: they are impossible to keep track of. Well, not impossible, but the only way I could record every fluctuation is if I didn't work all day and literally sat at home waiting for them in order to write them down.
From what I've noted so far, triggers include: walking, the cold, sitting still, not eating, not drinking, eating and drinking, sleeping too much, not sleeping enough.
I am all for control, ok, but there is just no way I am going to be able to control all these things that I might see as triggers.
Not eating and drinking - ok, I'll just eat or drink something. Cue trigger from eating or drinking. And I am being way more careful or what I'm eating these days.
I can't not walk. I can't avoid the cold in this country. And my job requires me to sit still at a desk. I take regular breaks, but this doesn't seem to help.
I have a cold at the moment which really hasn't helped but I can't stop that either really. I think the massive pains I'm getting in my right temple and sinuses (and weirdly, stabbing pains in my left ear that feel like someone is ramming a screwdriver down into there) are related to my cold. But I'm trying to treat and there's not a lot else I can do.
I saw Dave Taylor at the weekend, and whilst he is a great chap and a fantastic masseuse, he's didn't make a huge amount of difference, and that's because I leave too long between sessions. I have time and money issues (I lack both). But I'm making a headache plan because I have waged war on my head.
Or at least I thought I had, until I re-read my last post, all those months ago, and looked at the thread I had linked. I think the biggest problem is facing up to the fact that I may well have this condition for the rest of my life. And it really is difficult to do that when every single day it makes you want to blow your brains out. Honestly, no matter how happy I am with my boyfriend, my job, my life in general, everyday I wish there were a way I could blow my brains out just to get rid of this headache. I was to inject poison into my veins so the blood vessels that might be constricted just melt away. I want to poke my finger in my ear and keep poking until I get to the muscles around my head and just pull them out. Gone, away.
I have never been so close to jumping in front of a train as I was yesterday.
And it sounds melodramatic, and I know that I could be SO much worse off. But at the same time, I live with this pain every day. If I didn't have enough to deal with, like finding my own feet in the world, negotiating a career in this job-poor country and trying to carve an identity for myself, I am constantly taunted and tortured by this pain.
It is wearing me down faster than it has been before. I used to be pretty strong. I'm getting to feel pretty weak.
But when you have to sit and work all day with stabbing pains coming from both sides of your head and an ache at the bottom of skull like it's going to fall off, you do start to question the hell the point of it all is.
I am trying very hard to focus on the positives. I am starting hypnotherapy this coming Saturday, so hopefully I will be able to blog about that. What I'm aiming for (and I think he is on the same page with me about this) are some self-hypnosis techniques I can use to relax myself. I'm notoriously bad at relaxing, everybody I know knows this. The guy I am seeing is Steve Cook. He seems really lovely and keen to help. Maybe he's already worked his hypnosis skills on me but I feel I can trust this guy. He has been on the level with me about what he can and cannot do, and I am looking forward to some positive results.
I'm hoping I can find a community for Chronic headache sufferers. As soon as I do, I'll post it on here.
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